It really upset me because I’m in the same situation as you all…except that my gal Bri…only after 17 years of absent seizures..started having violent ones…her pain specialist said hormones can trigger them…that’s all fine…but what really gets me is that we can send people into space…to the moon ect…but no cancer cure…or anything..common cold..flue…or even all the millions of people suffering from seizures…no we don’t know!!!….we are all Guiny pigs for everything on this planet…and it’s always about money!…they can’t just cure us all…what would happen to the drug industry?….and your call is what I go through…what if we try this or that…I’m angry for th3 way we have to live testing and testing!….will they ever get it right?…no way…I’m 59 and did a ride for cancer on my bike when I was 9… so 50 years later…yes somethings have improved…but no cure…we had calculators…no computers when I was in high school…now look at this world…but still children are dying of cancer…it just like everything is about money!…just my opinion…!….🙏🙏🙏🙏💔💔💔🥰🥰🥰🥰
I bet Raelynn prefers having a snow day at home, instead of going out to Dr appointments. That’s great you can discuss online with a doctor sometimes. So sorry Raelynn had such an increase in seizures. Hope they might decrease again🙏It sounds like you always have a daily balancing act going on, looking for clues, figuring out what changes might be happening, and figuring out what adjustments to make. Like you can never stop being detectives – but by now you’re very good detectives👍thank goodness for Raelynn’s sake. Hope she’s had a day with fewer seizures.♡♡♡
7 is very much. Are you giving her a Diazepam or Midazolam, or some other rescue medication. Victoria today make a 5 minute seizure in school and put a intranasal Midazolam. Hugs from us.
Aw hope she gets te help 2 reduce her seizures. Were thy all grand mals? If so that will nok her out as well as te rescue med. Am havin 2-4 grand mals a week. Sendin uz all love & hugz x
Why does she sleep in a hospital bed
Hi how are you
Is raelynn a handicap?
Has she started seeing her period yet?
🙏😀❤️❤️❤️❤️❤️❤️
Your a beautiful girl Raelynn
God bless you
What does Raelynn do in the snow?? Have she had a snow in her hand it relax my hands to hold on to ice cube s
My sisters seizures were caused by antibiotics.
has Raelynn ever touched snow ? it may interest her and people to how she reacts to it .
You really have to watch someone that has seizures
My man, my heart goes out to y’all. People have no idea how involved this all is. I’m really glad y’all have made this channel.
I had status due to that antibiotic it strips out sodium valporate!
Meropenim ( can't spell it) gives me seizures when I never have them! but back in June I went in ICU for a really bad one due to this antibiotic.
It really upset me because I’m in the same situation as you all…except that my gal Bri…only after 17 years of absent seizures..started having violent ones…her pain specialist said hormones can trigger them…that’s all fine…but what really gets me is that we can send people into space…to the moon ect…but no cancer cure…or anything..common cold..flue…or even all the millions of people suffering from seizures…no we don’t know!!!….we are all Guiny pigs for everything on this planet…and it’s always about money!…they can’t just cure us all…what would happen to the drug industry?….and your call is what I go through…what if we try this or that…I’m angry for th3 way we have to live testing and testing!….will they ever get it right?…no way…I’m 59 and did a ride for cancer on my bike when I was 9… so 50 years later…yes somethings have improved…but no cure…we had calculators…no computers when I was in high school…now look at this world…but still children are dying of cancer…it just like everything is about money!…just my opinion…!….🙏🙏🙏🙏💔💔💔🥰🥰🥰🥰
Poor baby girl!…❤️💕❤️💕😘😘😘🌈
Seizures are the saddest thing in children. To watch and not be able to help is super tough
You should make a profile pictures one if her happy seizures when she’s my smiling😋
I bet Raelynn prefers having a snow day at home, instead of going out to Dr appointments. That’s great you can discuss online with a doctor sometimes. So sorry Raelynn had such an increase in seizures. Hope they might decrease again🙏It sounds like you always have a daily balancing act going on, looking for clues, figuring out what changes might be happening, and figuring out what adjustments to make. Like you can never stop being detectives – but by now you’re very good detectives👍thank goodness for Raelynn’s sake. Hope she’s had a day with fewer seizures.♡♡♡
I am sorry is she in any pain
I love the drs and menstruation at 6 What……I'm 24 and haven't had mine only maybe 5 times.
7 is very much.
Are you giving her a Diazepam or Midazolam, or some other rescue medication.
Victoria today make a 5 minute seizure in school and put a intranasal Midazolam.
Hugs from us.
Most informative video so far!
Today's video showed her having a total of seven seizures. I think I'll have to take a rescue pill for her. I wish her recovery and happiness.
Can you possibly make a video about her and puberty being so young? Ive never seen young children going through bodily changes before their teens
Hope she feels better
It’s so hard to see when a child had seizure and you can’t help it 😔 stay strong ❤️
Aw hope she gets te help 2 reduce her seizures. Were thy all grand mals? If so that will nok her out as well as te rescue med. Am havin 2-4 grand mals a week. Sendin uz all love & hugz x