Raelynn had 7 seizures today // Talking with doctors about her seizures



Raelynn has been having more seizures than usual. She had 7 today. It’s been a long day. 00:00 – Intro 01:00 – First seizure of the …

28 Comments

  1. It really upset me because I’m in the same situation as you all…except that my gal Bri…only after 17 years of absent seizures..started having violent ones…her pain specialist said hormones can trigger them…that’s all fine…but what really gets me is that we can send people into space…to the moon ect…but no cancer cure…or anything..common cold..flue…or even all the millions of people suffering from seizures…no we don’t know!!!….we are all Guiny pigs for everything on this planet…and it’s always about money!…they can’t just cure us all…what would happen to the drug industry?….and your call is what I go through…what if we try this or that…I’m angry for th3 way we have to live testing and testing!….will they ever get it right?…no way…I’m 59 and did a ride for cancer on my bike when I was 9… so 50 years later…yes somethings have improved…but no cure…we had calculators…no computers when I was in high school…now look at this world…but still children are dying of cancer…it just like everything is about money!…just my opinion…!….🙏🙏🙏🙏💔💔💔🥰🥰🥰🥰

  2. I bet Raelynn prefers having a snow day at home, instead of going out to Dr appointments. That’s great you can discuss online with a doctor sometimes. So sorry Raelynn had such an increase in seizures. Hope they might decrease again🙏It sounds like you always have a daily balancing act going on, looking for clues, figuring out what changes might be happening, and figuring out what adjustments to make. Like you can never stop being detectives – but by now you’re very good detectives👍thank goodness for Raelynn’s sake. Hope she’s had a day with fewer seizures.♡♡♡

  3. 7 is very much.
    Are you giving her a Diazepam or Midazolam, or some other rescue medication.
    Victoria today make a 5 minute seizure in school and put a intranasal Midazolam.
    Hugs from us.

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