When you think of narcolepsy, you probably think of people falling asleep at seemingly random times, but it’s actually much more …
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I was put on a patch made for people with dementia that helped regulate hypocretin. It helped me quite a bit but my new doctor will not use it. I moved and it has been years since it was prescribed to me. Has anyone else used this? I cannot recall the name at the moment.
im being evaluated what sleep disorder i have and when we got to the swine flu part i had a sinking feeling in my stomach. i thought my symptoms were much more recent, like they started a few months before the pandemic after i had a couple of returning flu cases. but maybe it's all connected to the swine flu
Just so others know, you can have narcoeptic symptoms without having narcolepsy per say. That is because this doctor is describing narcolepsy caused by the destruction of hypocretin producing cells, whereas there are also situations where hypocretin production is merely inhibited.
This video title should state specifically Type 1 Narcolepsy. Which is the deficiency of hypocretin. Type 2 doesn't have the hypocretin issue from my understanding.
I was falling asleep in class and falling over when laughing. We didn’t think about getting it studied until I was in HS and couldn’t learn because I was constantly sleeping.
finally i understand what happened. my grandmother had a nasty flu (she was hospitalized because life threatining case pneumonia), in her 30's and she blamed this flu for her narcolepsy, because shortly after getting better, she became narcoleptic. she lived with this.
Thank you for the very informative video, I was diagnosed with Narcolepsy with Cataplexy last November, its been a whirlwind the past seven years, having being misdiagnosed as having schizoaffective disorder due to my really strong hypnogogic and hypnopompic hallucinations back in 2013. It's been an insane one!
Bombardment of the brain with serotonin, histamine, and other neurotransmitters for a prolonged period of time that the brain internal regulatory mechanisms are broken. It's F*d up.
I used to take a sleep medicine called Lunesta until I started finding my keys in the fridge or a half-made peanut butter and toothpaste sandwich on the counter in the morning. They switched me over to a medication called Belsomra (Suvorexant). Apparently it is totally different in how it acts. It is an Orexin blocker. It works by decreasing the amount of Orexin that your brain produces and in turn makes you drowsy. It works like a charm. Sometimes too well. I can remember times where I’d wake up to use the bathroom and I couldn’t get on my feet because I had no control of them. I’d get out of bed and fall to the floor because I just couldn’t walk. Strange feeling. I think that this medication was somehow mimicking the symptoms of narcolepsy.
I was put on a patch made for people with dementia that helped regulate hypocretin. It helped me quite a bit but my new doctor will not use it. I moved and it has been years since it was prescribed to me. Has anyone else used this? I cannot recall the name at the moment.
all dogs have narcolepsy
Most likely caused by the vaccine, not the virus.
im being evaluated what sleep disorder i have and when we got to the swine flu part i had a sinking feeling in my stomach. i thought my symptoms were much more recent, like they started a few months before the pandemic after i had a couple of returning flu cases. but maybe it's all connected to the swine flu
Narcoleptic here.
Just so others know, you can have narcoeptic symptoms without having narcolepsy per say. That is because this doctor is describing narcolepsy caused by the destruction of hypocretin producing cells, whereas there are also situations where hypocretin production is merely inhibited.
Thank you. I’m a narcoleptic and I appreciate you bringing attention on this
I'm like the awkward in between. Excessive daytime drowsiness but I'm not showing all the signs of narcolepsy.
Cpuld this be caused by flu vaccine?
This video title should state specifically Type 1 Narcolepsy. Which is the deficiency of hypocretin. Type 2 doesn't have the hypocretin issue from my understanding.
What’s with the annoying voice?
I am experiencing narcolepsy lately together with autoimmune disease. I also think it may have something to do with blood sugar levels.
Narcolepsy had me like: hypersomnia all day, insomnia all day
Lmao ive never had the flu but im narcoleptic, this is ridiculous
Woahhhh great patience ! Thanks
I’ve had this since I was a kid.
I was falling asleep in class and falling over when laughing. We didn’t think about getting it studied until I was in HS and couldn’t learn because I was constantly sleeping.
Not been able to stay awake is not the same as falling sleep?
finally i understand what happened. my grandmother had a nasty flu (she was hospitalized because life threatining case pneumonia), in her 30's and she blamed this flu for her narcolepsy, because shortly after getting better, she became narcoleptic. she lived with this.
Many kids got Narcolepsy, & Cataplexy after Swine flu Vaccinations in the U.K.
Coconut Oil might help this problem, it does with M.S., Epilepisy, Alzheimer's, Parkinson's, Autism.
My cataplexy makes me pee my pants 😀
The most valued information available. thank you.
Thank you for the very informative video, I was diagnosed with Narcolepsy with Cataplexy last November, its been a whirlwind the past seven years, having being misdiagnosed as having schizoaffective disorder due to my really strong hypnogogic and hypnopompic hallucinations back in 2013. It's been an insane one!
Narcolepsy sucks!
Bombardment of the brain with serotonin, histamine, and other neurotransmitters for a prolonged period of time that the brain internal regulatory mechanisms are broken. It's F*d up.
I got the flu around the same time and slowly developed narcolepsy. What can I do. I take modafinil and it doesnt work well.
I used to take a sleep medicine called Lunesta until I started finding my keys in the fridge or a half-made peanut butter and toothpaste sandwich on the counter in the morning. They switched me over to a medication called Belsomra (Suvorexant). Apparently it is totally different in how it acts. It is an Orexin blocker. It works by decreasing the amount of Orexin that your brain produces and in turn makes you drowsy. It works like a charm. Sometimes too well. I can remember times where I’d wake up to use the bathroom and I couldn’t get on my feet because I had no control of them. I’d get out of bed and fall to the floor because I just couldn’t walk. Strange feeling. I think that this medication was somehow mimicking the symptoms of narcolepsy.