What's Actually Happening During a Seizure



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35 Comments

  1. My adult son suffered from diabetic seizures. His diabetes was so hard to control that he carried emergency items with him at all times. He always fell on his left side and had the locked limbs with the shaking. He never remembered what happened but, fortunately, I was always nearby and I knew what to do. I would put a roll of paper towels under his head to protect his neck, then have some moist paper towels ready in order to clean up his face when he was ready to sit up.

  2. I get an overwhelming feeling of dread. Like a weight on me. Then my legs start involuntarily twitching. At that point I know a seizure is coming fast.

  3. Before a seizure I usually get a feeling of insecurity.
    P.S. Out of curiosity, why aren't the cadavers still rigor mortified?
    Never mind. I looked it up. Ends up it's temporary & only lasts up to 2 days. 🙂

  4. I smell mildew or hear a non existing radio (like the tunner is turning) before my seizures. Sometimes I hear it for a few days before and feel insane, until the seizure happens. They found a lesion on my left temporal lobe and have claimed it as the focal position. I also have symptomatic chiari I, so no one is exactly sure of the causes.

  5. I had two seizure like episodes last month. They lasted 4 to 5 hours. But I don't have epilepsy, nothing was wrong on scans etc. It was just extreme stress on my mental and physical health.

    It was SO scary, my eyes were turned white and my whole body was in a bad bad cramp. It hurted so much.. But nobody knows why it happened. I think the stress,, (I just had surgery and was verrrrry stressed about it, just moved and renovated house, and was in extreme pain)

  6. Can someone with epilsepsy have multiple types of seizures? Watching this, it seems like my epileptic partner suffers from both clonic and myoclonic seizures. Are they so similar in nature that they can both occur? She often suffers from arm and hand spasms, in which they'll suddenly twitch and then lock up, unable to move them until the muscle relaxes, as well as her clonic seizures, which often occur at night, once or twice a month.

  7. I was always told when my sister had epilepsy to roll her onto her side during and rub her back til it subsided so she wouldn't choke and she had a lot of these, I still believe to this day that is the best method because it helped calm her and she just drooled onto the floor.

  8. as someone with epilepsy, seeing informative videos like this makes me so happy. it’s such a misunderstood disorder, even to neurologists. there’s so much misinformation when it comes to seizure first aid that it puts us in danger. knowing that so many people have watched this video brings some peace of mind 🙂

  9. The scary part is the start the lost, stray thoughts. Like ur looking at ur self from across the room and ur dying but u'll still be alive but dead. Then a few head twitching then lights out few 30mins plus. After 10years I'm still shitting myself

  10. I have severe epilepsy I even went into status epelepticus lucky the doctors were able to stop it but I almost died that day, the crazy part is that my seizures come with no warning at all no auras no weird smells they just happen but luckily for me my meds keep me under control now before they would resist my meds and I would have break throughs almost everyday the meds I take are depakote vimpat banzel and dilantin

  11. I was told I had Febrile seizures as a child and was basically a zombie on Phenobarbital when I had my seizures. I had something like 270 or more known seizures over the course of my life from birth til 11 years of age. Doctors don't think mine were febrile. I'm discovering I did get a fever and overheat/have heat stroke with some of my seizures and my skull did thicken after my seizures but my brain is fine. I've been having tests over time on my brain/body due to gaining migraines, having constant numbness throughout my body, being unable to regulate temperatures, smelling things weirdly, experiencing vertigo, and having visual disturbances. No sign of seizures has been detected. I had a head trauma from snapping my nose which made me lose my smell, gain migraines, messed up my vision, etc. Now I'm wondering if psychogenic non epileptic seizures could be what I'm experiencing.

  12. I'll do a DNA test when they are able to do them without asking me for volumes of genealogical and ethnicity information. It comes across as they're having you tell them what results you'll get.
    Then there are the cases of people sending in dog saliva and other mammal samples and getting results that are obviously fraudulent.

  13. I believe I have the thing he talks about where it seems that you have epilepsy, but actually don’t. (The psychogenic non-epileptic seizures.) Since I’ve had EEG tests done and the Doctors actually don’t believe or think I have epilepsy.
    So as of now it’s kinda a mystery and I, & people around me kinda am just hoping they stop.

  14. a friend of mine has non-epeleptic seizures from stopping drinking, she went in the hospital for covid and was a heavy drinker, the doctors hounded her about the drinking but didn't tell her, she would need medical help to stop drinking at her level of alcoholism (gallon and a half of whiskey a day), after she got out of the hospital she decided to quit drinking on her own. long story short hers don't sound exactly like any of the ones described here, she'll be standing or sitting some were or doing something and just seems to pass out for like 30 seconds and then for another 20- 40 seconds she's dizzy and disoriented and then she's seemingly fine she's been on 5 medicines but so far nothing has helped her yet she just started a different one so hopefully…

  15. I am a diagnosed epileptic. I had one big episode where I lost consciousness and had an atonic seizure while driving. Luckily, I was just entering a parking space and I was going very slow. After I got medicated I had no seizures at all. Before this episode, I had different mild focal seizures (I believe) in my temporal lobe but I did never lose consciousness during these smaller episodes. I did not even know what these episodes were. My aura vas a very intense feeling of Dejavu where I would feel like I could travel in time and I would relive how I felt during dreams. As if dreams and reality would collapse in one another. I started to remember my dreams very vividly. Until now I remember my dreams most of the time. During the time I spent without medication and had these mild seizures where I would only have strong feelings of Dejavu I had a very hard time with memory. I forgot big snippets of what I did throughout two years like travels and meeting people. I also had a harder time with numbers and math. It was very scary not knowing what was happening to me until I got a big seizure during a very stressful and emotional time and then got diagnosed.

  16. IMPORTANT. Do guide them to the floor. if you are holding them, it's not for restraining them, but to slowly guide them closer to gravity, and also away from potential hazards. Follow where their muscles want to go.

  17. My first one was a tonic. TIM-BER! Mom was tonic/clonic. We never lost control of bowel and bladder. My auras were Dejavu like. It was a massive surge of information going too fast to remember. I knew why JFK was shot. Can't remember though!🤣 We can't talk after one. Our eyes don't work right. Have to sleep 12 hours afterward.

  18. I've had over a dozen seizures from withdrawals. I wish there was a phrase or words I could use to really describe it. It's like thought loops, and I feel like everything is giving me a message or talking to me.

    I never had this happen unless it's right before a seizure but it can get scary

  19. seizures suck ..i had my first one at 19, im 30..it was all due to anxiety meds… and then it got better,, i havent had one since i was like 24 or so… i just Had one over the weekend, such a set back ughh

  20. I have very mild form of epilepsy, meaning I’ve only ever had 2 seizures, but I can clearly remember a very strong headache which gradually got stronger and stronger until i lost consciousness immediately preceding my first seizure.

  21. I have never had a seizure in my life, but recently I was at work and I had one. The doctor at the hospital blamed it on an electrolyte embalace. They said my blood didn’t show signs of electrolytes. Now I am humiliated, embarrassed, everyone thought I was on drugs, I just don’t know if I’m going to stay at the job. I’m Also scared it may happen again. I am also not on drugs.

  22. I have seizures cause from strokes stemming from an AVM I usually have a taste of saline in the back of my mouth and I’ll completely lose a sense of where I am before going into the seizure

  23. I have epilepsy. a brain tumor in my right amygdala caused my epilepsy since I was in 6th grade, but we never found out until I crashed my car, when I had a seizure at the wheel 😢… the
    tumor was removed and I no longer have focal epilepsy with complex partial seizures, but I do have psychogenic seizures. is it possible to be diagnosed with both kinds of seizures?
    Also, when I had my auras, I smelled rubbing alcohol and tasted blood.
    thank you! ❤

  24. i was diagnosed with epilepsy at age 7 (i'm 21 now and i've been seizure-free for about 4 years, yay!). in my aura phases i always hear the same set of sounds. it's a gibberish conversation followed by a weird slide whistle-ish sound. apparently i had my first seizure while watching cartoons, so maybe that's what my brain is recalling? my mom told me that when i had that first seizure i asked her to turn the sound down because it "smelled like burnt tires". in a later seizure i was in a completely silent room and i told my mom that "people were speaking too loudly". auras are very interesting!! seizures are very scary and i recently realized that i have quite a bit of trauma related to them, but oh well, i'm just glad my epilepsy is very much under control now

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