Ok Maybe it was one of the other kids, but when griifin stopped and knelt down on the walk i swear i heard, "i'm done," right before. Glad his tooth is gonna be removed soon… i think you said on the 10th?
What stroller is it called my sister needs an adoptable stroller with her and Rela hood on it so we’ve been looking for good strollers for her special needs child
Don't feel guilty. Your love for Griffin is without question. You must remember that even our animals we train to be acceptable out in society. Don't our children deserve that chance even more. It is the autistic kids that are never taught how to interact correctly that wind up being "warehoused" when they get older because they are too violent to be around people. Wishing you the best.
You are wonderful parents to Griffin and all your children. I have a 51 year old brother with Angelman Syndrome and it is a hard journey. Saying that is okay and real and doesn’t have anything to do with how much you love and cherish them.
Don't feel bad or embarrassed for how you feel. I am proud of you for saying it cuz I think other moms would never admit it but they feel the exact same way. It doesn't take away from the love you have for him. I really do hope you find the answers you need. 💕
I'm praying for you daily, Emily. I see how hard this all is and I feel your pain. Asking Jesus to give you a break and to help the boys at school. Hang in there. God bless
I really think that if Griffin had other parents he would be an abused child because I don't think a lot of people could deal with the behaviors that he has he has the best darn parents he could possibly have right now Emily you and will are the best you help him so much and you could tell there's so much love there keep going things will get better
You should check with the youtibe family fathering autism as they use a app at medical appt that is able record all medical stuff, summarize it, record med info and so much more as they said its amazing since they cannot always take in what the doctors are saying when supporting their daughter. I think its called something like Bridge but don't know for sure.
There’s a channel on YouTube, it’s autism related, but essentially they repost videos (with the original posters permission) to raise not just awareness for autism, but about ‘carers burnout’; there was a video I watched of a mother crying uncontrollably, as her disabled daughter (wheelchair bound) who needed 24/7 round the clock care was reaching out, & she said ‘I love this child with every fibre of my being, but I can’t do this anymore, I’m burnt out, I have no help, it’s just me’ & my heart broke. It doesn’t matter if you’re caring for a disabled child, a disabled adult, or someone elderly, I’ve experienced carers burnout, it’s debilitating, you question everything – the exhaustion is no joke. I think your reasons for fearing AB therapy are very real & legitimate, so please don’t feel you have to explain your reasonings. Those who judge aren’t taking into account you have 5 other children to consider, 2 of which are also special needs, one of your eldest also has health issues, & I think it’s healthy to want that small chunk of time for you & Will, whether to spend together or alone just to compose / re energise yourselves. It’s healthy to need time on your own & no one should ever question that Emily.
Please do look into CBD testimonials from other mums regarding seizures; it’s literally saved lives. I would highly recommend trying it. It may also help calm his anxiety.
I’m so glad the appointments went well! You’re doing wonderfully xx
Emily, a non-medical question: HOW do you manage to look so polished & beautiful THAT early in the morning & then stay that way the rest of the day?! I'll wait…! ❤️
You should be able to be real on yout youtube channel I swear people who talks sh*t about anything you say you should not listen to. Girl my son is 34 yrs old and if you were bullshitting I would be annoyed so keep being real!! My son was born healthy became ill w meningococcal at 3.9 yrs old and we have had to deal w other people's ideas of how we should deal w his issues for a very long time so my advice to you is f them do what you need to. No one absolutely Noone has a clue as to what is good or right or whatever and they will never understand so do whatever you need. If you don't they will criticize its a no win situation and it is what it is!! Much love and respect to you and will!! Keep on keeping on! We have been judged and criticized for 30 yrs and it will prob always be that way!! Just do you best and be proud of it!!
There are some apps that you can use at doctors office to record and transcribes what the doctor is telling you. Medcorder I having to personally use this one. Abridge I have use this one and it lets you add people so it’s perfect if somebody has to take care of someone else medical needs. I like That it Bolts medical terms. I use it for myself and my guide dog because I can’t remember what they tell me at doctor visit😅
You are a great mom! Your kids were given to you because you do everything you can possibly do for them even the hard things. It's okay to be emotional about the hard times. Even parents who have typical children have hard times but you have several all with different needs and you still take care/ make sure to give time to the ones without special needs. You are a great mom who cares deeply and only wants the best. Cry, scream, talk it's all okay. I love watching you because you are real and show the good with the bad. You are worth it!!!!
First, i love the crafts you have done! halloween, the lighting, etc….that’s so much fun for children & parents, too.
Griffin is adorable, very good looking, such an infectious smile & sparkling eyes! but he’s growing up and gaining strength, & i worry in the months/years ahead, he will be literally too strong for you to handle. you are mighty, Emily, but you are also small. and i know you adore him. you are his cheerleader…….don’t we all need a cheerleader!
so much information today, so many things for you to consider…….it must be very overwhelming. but today was an exceptional day, a long day, Griffin met many strangers……he, like you, was on overload by the time you got home. hopefully, he will simmer down in the days ahead and get back more closely to his normal.
imo, no one group of parents could do more for a child than you are doing for Griffin. you are doing ALL you know to do every day & in every way. in 6 months, you will likely have more info to make a change if that’s what Will & you decide to do.
please know i learn very much from your videos. i am extremely interested. you have very many talents, Emily. please trust that your observations and your daily interactions with Griffin will lead you to be better able to handle what’s ahead with griffin.
I admire you and commend you for your constant courage and never ending endurance. Thank you for not sugar coating it like most other channels. I believe it really helps other families going through it. You are seen and heard and you are right – life is not easy. But I have faith and hope that our endurance will reap rewards – if not in this life – beyond! You my dear, give us the strength to carry on.
Glad you got good help from the Angelman Clinic. 👏Kind of glad they got to see some of Griffin’s behaviors. Maybe that helps them help you.
See the early and late vlogs of Fathering Autism. They’ve done in-home (what a pain) ABA therapy for years. Their non-verbal daughter has made some modest progress, but still has some of the same negative behaviors. They deal with just 1 affected child, now a teenager. They’ve focused on constant behavioral attention with just her. There aren’t many miracles in these very sad disorders. You said there must be a waiting list for in-clinic ABA. Since you might need that option in 6 months, maybe you should apply now to get on the waiting list. If you don’t need that option in 6 or 8 months, I’m sure another family will need it.
I’m concerned about Griffin’s strength and how much stronger and heavier he’ll get as he grows. I’m also concerned that ABA therapy in your home will be too much for you. The other kids will lose out, because it takes so much focus on 1 child. You and Will would have to learn everything in that therapy, and constantly work with Griffin, constantly every day.
If you can get on a waiting list for in-clinic, you might have an option you don’t want to miss or lose. You’ll still have to learn and commit to using all the ABA behavior rules and practices. But having the option to get a spot in-clinic seems like a good plan.
Still hoping that getting the tooth pain solved will help! I mean only to help, because I’ve been through the effects of aggressive behaviors on a family. Having an option is a good plan. ❤️ to all.
Your real feelings is a human reaction…you & Will are doing your very best for Griffin & your other children…do what you need to do to keep him safe & to keep others safe! Y’all are in my prayers 🙏🏻
Special needs children will always have behaviors even in adults hood I work with kids and adults since 1990. This is a fact take the twins to a.b a. therapy center so you can get a little break and some peace.
I love that you guys do EVERYTHING possible for Griffin to get top-notch, quality medical care. You guys are literally Gold medalist parents,, I hope I'm JUST like you both when I become a parent ❤🥺 (Also,, Angelman kiddos have a natural urge to get their hands and feet dirty because of sensory seeking nerve in the brain. They CRAVE the feeling of mud or sand or water on their skin. Another thing, Angel kiddos have EXTRA sensitive feet and palms due to their Epilepsy. The seizures can wear down the nerves overtime, making them sensitive. 💙💙)
I have seen so many kids excel after aba therapy. One of my best friend has done aba therapy for 18 months and he is doing well in school because of the therapy!!! You are great mom!!!
Are you giving his tooth pain meds on the dot? The medical community says you have to always be on top of it or in front of it to keep the pain repressed w/o breakthroughs. Just a reminder. 😉
Glad you have a place where you can get help for Griffin and that he is doing so well
Ok
Maybe it was one of the other kids, but when griifin stopped and knelt down on the walk i swear i heard, "i'm done," right before.
Glad his tooth is gonna be removed soon… i think you said on the 10th?
What stroller is it called my sister needs an adoptable stroller with her and Rela hood on it so we’ve been looking for good strollers for her special needs child
You are great parents!
Don't feel guilty. Your love for Griffin is without question. You must remember that even our animals we train to be acceptable out in society. Don't our children deserve that chance even more. It is the autistic kids that are never taught how to interact correctly that wind up being "warehoused" when they get older because they are too violent to be around people. Wishing you the best.
You are wonderful parents to Griffin and all your children. I have a 51 year old brother with Angelman Syndrome and it is a hard journey. Saying that is okay and real and doesn’t have anything to do with how much you love and cherish them.
Riley has Duplication 15q Syndrome which is on the same Chromosome
Don't feel bad or embarrassed for how you feel. I am proud of you for saying it cuz I think other moms would never admit it but they feel the exact same way. It doesn't take away from the love you have for him. I really do hope you find the answers you need. 💕
I'm praying for you daily, Emily. I see how hard this all is and I feel your pain. Asking Jesus to give you a break and to help the boys at school. Hang in there. God bless
There are a handful of apps that are designed to record medical appointments to help with remembering all the info thrown at you.
I really think that if Griffin had other parents he would be an abused child because I don't think a lot of people could deal with the behaviors that he has he has the best darn parents he could possibly have right now Emily you and will are the best you help him so much and you could tell there's so much love there keep going things will get better
You should check with the youtibe family fathering autism as they use a app at medical appt that is able record all medical stuff, summarize it, record med info and so much more as they said its amazing since they cannot always take in what the doctors are saying when supporting their daughter. I think its called something like Bridge but don't know for sure.
There’s a channel on YouTube, it’s autism related, but essentially they repost videos (with the original posters permission) to raise not just awareness for autism, but about ‘carers burnout’; there was a video I watched of a mother crying uncontrollably, as her disabled daughter (wheelchair bound) who needed 24/7 round the clock care was reaching out, & she said ‘I love this child with every fibre of my being, but I can’t do this anymore, I’m burnt out, I have no help, it’s just me’ & my heart broke. It doesn’t matter if you’re caring for a disabled child, a disabled adult, or someone elderly, I’ve experienced carers burnout, it’s debilitating, you question everything – the exhaustion is no joke. I think your reasons for fearing AB therapy are very real & legitimate, so please don’t feel you have to explain your reasonings. Those who judge aren’t taking into account you have 5 other children to consider, 2 of which are also special needs, one of your eldest also has health issues, & I think it’s healthy to want that small chunk of time for you & Will, whether to spend together or alone just to compose / re energise yourselves. It’s healthy to need time on your own & no one should ever question that Emily.
Please do look into CBD testimonials from other mums regarding seizures; it’s literally saved lives. I would highly recommend trying it. It may also help calm his anxiety.
I’m so glad the appointments went well! You’re doing wonderfully xx
Emily, a non-medical question: HOW do you manage to look so polished & beautiful THAT early in the morning & then stay that way the rest of the day?! I'll wait…! ❤️
You should be able to be real on yout youtube channel I swear people who talks sh*t about anything you say you should not listen to. Girl my son is 34 yrs old and if you were bullshitting I would be annoyed so keep being real!! My son was born healthy became ill w meningococcal at 3.9 yrs old and we have had to deal w other people's ideas of how we should deal w his issues for a very long time so my advice to you is f them do what you need to. No one absolutely Noone has a clue as to what is good or right or whatever and they will never understand so do whatever you need. If you don't they will criticize its a no win situation and it is what it is!! Much love and respect to you and will!! Keep on keeping on! We have been judged and criticized for 30 yrs and it will prob always be that way!! Just do you best and be proud of it!!
Epidialects is good
My so takes epidialex not sure I'd spelling is correct
❤
There are some apps that you can use at doctors office to record and transcribes what the doctor is telling you.
Medcorder I having to personally use this one.
Abridge I have use this one and it lets you add people so it’s perfect if somebody has to take care of someone else medical needs. I like That it Bolts medical terms. I use it for myself and my guide dog because I can’t remember what they tell me at doctor visit😅
Have you tried miralax for the constapation?
Griffen your such a sweet boy.
The jar craft can cause Griffin to have seizures because of the flashing lights and could make his behaviors worse.
You are a great mom! Your kids were given to you because you do everything you can possibly do for them even the hard things. It's okay to be emotional about the hard times. Even parents who have typical children have hard times but you have several all with different needs and you still take care/ make sure to give time to the ones without special needs. You are a great mom who cares deeply and only wants the best. Cry, scream, talk it's all okay. I love watching you because you are real and show the good with the bad. You are worth it!!!!
First, i love the crafts you have done! halloween, the lighting, etc….that’s so much fun for children & parents, too.
Griffin is adorable, very good looking, such an infectious smile & sparkling eyes! but he’s growing up and gaining strength, & i worry in the months/years ahead, he will be literally too strong for you to handle. you are mighty, Emily, but you are also small. and i know you adore him. you are his cheerleader…….don’t we all need a cheerleader!
so much information today, so many things for you to consider…….it must be very overwhelming. but today was an exceptional day, a long day, Griffin met many strangers……he, like you, was on overload by the time you got home. hopefully, he will simmer down in the days ahead and get back more closely to his normal.
imo, no one group of parents could do more for a child than you are doing for Griffin. you are doing ALL you know to do every day & in every way. in 6 months, you will likely have more info to make a change if that’s what Will & you decide to do.
please know i learn very much from your videos. i am extremely interested. you have very many talents, Emily. please trust that your observations and your daily interactions with Griffin will lead you to be better able to handle what’s ahead with griffin.
Can griffin walk
And this is Makenna writing not Lisa
I’m a little more independent
And it’s deletion instead of duplication
I have the same chromosome effected but it’s called Prader Willi syndrome
I admire you and commend you for your constant courage and never ending endurance. Thank you for not sugar coating it like most other channels. I believe it really helps other families going through it. You are seen and heard and you are right – life is not easy. But I have faith and hope that our endurance will reap rewards – if not in this life – beyond! You my dear, give us the strength to carry on.
Be careful those flashes can trigger seizures
Glad you got good help from the Angelman Clinic. 👏Kind of glad they got to see some of Griffin’s behaviors. Maybe that helps them help you.
See the early and late vlogs of Fathering Autism. They’ve done in-home (what a pain) ABA therapy for years. Their non-verbal daughter has made some modest progress, but still has some of the same negative behaviors. They deal with just 1 affected child, now a teenager. They’ve focused on constant behavioral attention with just her. There aren’t many miracles in these very sad disorders.
You said there must be a waiting list for in-clinic ABA. Since you might need that option in 6 months, maybe you should apply now to get on the waiting list. If you don’t need that option in 6 or 8 months, I’m sure another family will need it.
I’m concerned about Griffin’s strength and how much stronger and heavier he’ll get as he grows. I’m also concerned that ABA therapy in your home will be too much for you. The other kids will lose out, because it takes so much focus on 1 child. You and Will would have to learn everything in that therapy, and constantly work with Griffin, constantly every day.
If you can get on a waiting list for in-clinic, you might have an option you don’t want to miss or lose. You’ll still have to learn and commit to using all the ABA behavior rules and practices. But having the option to get a spot in-clinic seems like a good plan.
Still hoping that getting the tooth pain solved will help! I mean only to help, because I’ve been through the effects of aggressive behaviors on a family. Having an option is a good plan.
❤️ to all.
Pray for your child. Pray for each child lay your hands on them and pray prayer works.
Emily & Will don’t forget Y’ALL ARE WONDERFUL ❤❤
Your real feelings is a human reaction…you & Will are doing your very best for Griffin & your other children…do what you need to do to keep him safe & to keep others safe! Y’all are in my prayers 🙏🏻
Still think new ADHD med needs to be looked at/adjusted
Griffin is so cute
You are wonderful
Of course you didn’t want this level of challenge for your kids. No one would . Perfectly normal feeling
Love this family
Special needs children will always have behaviors even in adults hood I work with kids and adults since 1990. This is a fact take the twins to a.b a. therapy center so you can get a little break and some peace.
The most amazing beautiful family 👏🏼👏🏼👏🏼💜🙏🏼🇨🇦
Warning would be nice I agree love your vlogs
Have you ever considered homeschooling the boys and just keeping the girls in school because the boys seem to need a lot more help
I love that you guys do EVERYTHING possible for Griffin to get top-notch, quality medical care. You guys are literally Gold medalist parents,, I hope I'm JUST like you both when I become a parent ❤🥺
(Also,, Angelman kiddos have a natural urge to get their hands and feet dirty because of sensory seeking nerve in the brain. They CRAVE the feeling of mud or sand or water on their skin. Another thing, Angel kiddos have EXTRA sensitive feet and palms due to their Epilepsy. The seizures can wear down the nerves overtime, making them sensitive. 💙💙)
I have seen so many kids excel after aba therapy. One of my best friend has done aba therapy for 18 months and he is doing well in school because of the therapy!!! You are great mom!!!
Are you giving his tooth pain meds on the dot? The medical community says you have to always be on top of it or in front of it to keep the pain repressed w/o breakthroughs. Just a reminder. 😉