HE'S having more seizure you HAVE three 👧 AND some swimming suits three 👦how OLD IS THE 👧 AND THE 👦 day love to play IN THE water day love TO make a miss what THE toy
I'm sorry for the loss of your mom. I lost my mom, as well, and it's definitely a brutal pain. It'll be four years next month, and still have incredibly difficult days, while other days are peaceful knowing the suffering she is no longer in. Much love from me to your family.
Just discovered your channel! You have such a beautiful family!!! We definitely know what it's like trying to get all the kids to look at smile at the same time. It's borderline impossible!!! Hope you're able to figure out the best course of action for Griffen's seizures. Our youngest daughter has several seizures a day (she has epilepsy, among other things). But children are a blessing, and we all have our issues! We just know what hers are. 🙂 Take care, and I'm subscribing!
I am thinking about baby #5, i have 4 under 4 currently and im afraid my body cant handle another delivery. Did you have any post partum complications?
You know what I did with all my dad‘s favorite shirts Instead of just hanging them in the closet or getting rid of them I made pillows I made a pillow out of his favorite sweatshirt for me I made my brother a pillow and all my three children out of his shirts so now they have something to remember him bye and they can use or display on a bed or a couch that might be something you might like to think of for your mom if she had a favorite shirt or dress that you liked and it was her favorite you can make a pillow out of it and then you’re keeping her memories with you💕
I have no idea the laws in NY CBD might be an option. I have seen some remarkable changes. Huge hugs! My first words at the title was oh no, she doesn't need this right now. Given your mom's passing.
I work with a boy with Angelman syndrome and he’s on 2 seizure medications. He seems to have more seizures when he hasn’t slept much. Also when he grows he’ll start having a lot more because his medication levels are off and he needs a higher dose.
As the mom of a kid with a lifetime of seizures I can tell you that because of growth/weight gain , there will always be med adjustments and periods when things are well controlled and gradually breakthrough seizures, then an increase in meds. Don’t worry it doesn’t mean he’s on the wrong meds, it just means he needs more. Once they stop growing it’s easy to maintain.
Have you tried CBD oil? Anything natural?? He doesn’t have to be on these horrible meds. God has created many natural remedies for so many mental and physical issues!😍🌈🌸💕🙏🏼
You are all in my prayers! As you grieve and mourn and praying for little Griffin, too. I love your videos and how real you keep it. You’re doing wonderful (no pun intended 🙃) Much love to you all!! 💕💕🤣
Looks like you had a wonderful Memorial Day and It was your mom that sent you the beautiful sunshine and just have faith that she is smiling down on you and the warmth of the sun is her wrapping her arms around you and saying you are doing an amazing job and that she loves you & will always be shining down on your family
My 11 year old daughter had a big seizure a year in a half ago. We started her on Keppra(after seeing a neurologist and getting an EEG done) she started out on 6ml's and through the last year in a half has gone up to 12ml's. The body/mind sometimes becomes used to the medication and kids/adults can still have electrical shocks in their brains, causing more seizures. Going up in seizure medication sounds bad, but it's really not. The neurologists goal is to have Griffin seizure free. That way, he doesn't stop walking or talking and he can be a 3 year old. If I were you I'd definitely talk to Griffin's neurologist and increase the meds, if that's what they suggest.
I just watched a vid from a mother who adopted a disabled child and gave him away because it was hard! Heartbreaking for this toss away child – I just want to say I see it’s hard but I have to give you such koodos for your inclusiveness and the love you lavish on your son. Hang in there as soon as this pandemic is over there will be help for him and you and maybe you can get a break anyway good job to you love peace for you too
I am so sorry you are going through this but I would definitely up the dose of seizure meds. My son had seizures as a baby too and I know how hard it is to get that balance right but I def think a small increase will help
Y'all have such beautiful kids . Lindy is looking more and more like a little girl version of Will every day . So darn cute and once she got the walking thing down there was no stopping her right ? Lol .
When Wyn put her arms out and tried to hold all of the siblings in place my heart just straight up melted. Professional big sister! Your family brightened my day today. Thank you.
Lovely to see the children enjoying the slip n slide and pool. So enjoyed watching them have fun. The expressions of Lindy and Griffen waving melted my heart. Your parents home is beautiful and the colours certainly reflect your Mom's eye for beauty.
The matching & coordinating SwimSuits and Patriotic 🇺🇸 Outfits were so ADORABLE 😍 You will so LOVE looking back on these days & pictures !! You’re doing GREAT Emily… I know you may not feel Great or think your doing Great , but Truly You ARE 💙💗💙💙💗💗
Wow Seizures
HE'S having more seizure you HAVE three 👧 AND some swimming suits three 👦how OLD IS THE 👧 AND THE 👦 day love to play IN THE water day love TO make a miss what THE toy
Try topamax it’s a great seizure medication
I'm sorry for the loss of your mom. I lost my mom, as well, and it's definitely a brutal pain. It'll be four years next month, and still have incredibly difficult days, while other days are peaceful knowing the suffering she is no longer in. Much love from me to your family.
Just discovered your channel! You have such a beautiful family!!! We definitely know what it's like trying to get all the kids to look at smile at the same time. It's borderline impossible!!! Hope you're able to figure out the best course of action for Griffen's seizures. Our youngest daughter has several seizures a day (she has epilepsy, among other things). But children are a blessing, and we all have our issues! We just know what hers are. 🙂 Take care, and I'm subscribing!
I am thinking about baby #5, i have 4 under 4 currently and im afraid my body cant handle another delivery. Did you have any post partum complications?
Is your parents house big enough for you to move in with him.?
You know what I did with all my dad‘s favorite shirts
Instead of just hanging them in the closet or getting rid of them I made pillows I made a pillow out of his favorite sweatshirt for me I made my brother a pillow and all my three children out of his shirts so now they have something to remember him bye and they can use or display on a bed or a couch that might be something you might like to think of for your mom if she had a favorite shirt or dress that you liked and it was her favorite you can make a pillow out of it and then you’re keeping her memories with you💕
Emily, you favor your dad so much and so do some of your kids! Love your relationship with him.
I have no idea the laws in NY CBD might be an option. I have seen some remarkable changes.
Huge hugs! My first words at the title was oh no, she doesn't need this right now. Given your mom's passing.
Where upstate New York do you live I'm from Corning New York
My cousin has Angelmen syndrome so I have been able to see the progression of the disease and it's so hard
I work with a boy with Angelman syndrome and he’s on 2 seizure medications. He seems to have more seizures when he hasn’t slept much. Also when he grows he’ll start having a lot more because his medication levels are off and he needs a higher dose.
When you take a photo say candys or sweetys what ever you call them 😂🤣 kids always look for lollies haha 🥰😊💐
Take griffin to the hospice center ASAP
As the mom of a kid with a lifetime of seizures I can tell you that because of growth/weight gain , there will always be med adjustments and periods when things are well controlled and gradually breakthrough seizures, then an increase in meds. Don’t worry it doesn’t mean he’s on the wrong meds, it just means he needs more. Once they stop growing it’s easy to maintain.
Have you looked into a keto diet and CBD oil for seizure prevention?
Your mum and dads house is so beautiful
Griffin's adorable!!
Have you tried CBD oil? Anything natural?? He doesn’t have to be on these horrible meds. God has created many natural remedies for so many mental and physical issues!😍🌈🌸💕🙏🏼
Lindy looks soo much like Harrison!!!!
You are all in my prayers! As you grieve and mourn and praying for little Griffin, too. I love your videos and how real you keep it. You’re doing wonderful (no pun intended 🙃) Much love to you all!! 💕💕🤣
Looks like you had a wonderful Memorial Day and It was your mom that sent you the beautiful sunshine and just have faith that she is smiling down on you and the warmth of the sun is her wrapping her arms around you and saying you are doing an amazing job and that she loves you & will always be shining down on your family
Girl she's proud of you she's watching you and smiling your such an amazing woman all those kiddos I'd be going crazy lol
Love your parents house. That's one I would keep forever. Did you ever think of living in the house?
My 11 year old daughter had a big seizure a year in a half ago. We started her on Keppra(after seeing a neurologist and getting an EEG done) she started out on 6ml's and through the last year in a half has gone up to 12ml's. The body/mind sometimes becomes used to the medication and kids/adults can still have electrical shocks in their brains, causing more seizures. Going up in seizure medication sounds bad, but it's really not. The neurologists goal is to have Griffin seizure free. That way, he doesn't stop walking or talking and he can be a 3 year old.
If I were you I'd definitely talk to Griffin's neurologist and increase the meds, if that's what they suggest.
Sending lots of love and hugs hugs xxxxx you are the best mumma
Emily have you consider marijuana for Griffin?
You guys are ALWAYS in my thoughts and prayers. Sent to all of you with 💕
Hey have you tried CBD oil I hear it does wonders ( I don’t do or take it ) but I have watched the vids on seizures ??? Just wondering
I laughed out loud twice I never laugh out loud
I just watched a vid from a mother who adopted a disabled child and gave him away because it was hard! Heartbreaking for this toss away child – I just want to say I see it’s hard but I have to give you such koodos for your inclusiveness and the love you lavish on your son. Hang in there as soon as this pandemic is over there will be help for him and you and maybe you can get a break anyway good job to you love peace for you too
I am so sorry you are going through this but I would definitely up the dose of seizure meds. My son had seizures as a baby too and I know how hard it is to get that balance right but I def think a small increase will help
Y'all have such beautiful kids . Lindy is looking more and more like a little girl version of Will every day . So darn cute and once she got the walking thing down there was no stopping her right ? Lol .
What a little trooper is Wynn – she’s looks like you Emily
Looks like a beautiful place to live
When you guys move to South Carolina, do you think your dad will come with you or will he stay in New York?
Hope Griffin is better😍
When Wyn put her arms out and tried to hold all of the siblings in place my heart just straight up melted. Professional big sister! Your family brightened my day today. Thank you.
Lovely to see the children enjoying the slip n slide and pool. So enjoyed watching them have fun. The expressions of Lindy and Griffen waving melted my heart. Your parents home is beautiful and the colours certainly reflect your Mom's eye for beauty.
The matching & coordinating SwimSuits and Patriotic 🇺🇸 Outfits were so ADORABLE 😍 You will so LOVE looking back on these days & pictures !! You’re doing GREAT Emily… I know you may not feel Great or think your doing Great , but Truly You ARE 💙💗💙💙💗💗