i'm so grateful to you for sharing these videos–even sufferers don't fully understand how it can impact us. it hits different coming from an empathetic expert that also was affected personally. it's always comforting to hear you so thank you 💙
Good morning. I am starting my journey of a neurological, autoimmune journey. My Dr and I have been running tests since January. Every rime we start to chase a disease, I occupy my headspace with research. The one we are chasing right now is MS. The symptoms really seem to line up… I have had 1 MRI, of my brain, which does show lesions, but since I am also a long-term sufferer of migraines, we are unsure the cause. I have a follow up MRI for my spine, to look for lesions there as well, with an LP, if necessary. I will also be seeing a neurologist, to help confirm (or deny) the diagnosis. All this to say, Thank You. Whether this ends up being MS or not, your videos have been such a wealth of knowledge. I wish every condition I have looked up over the last 4 months had an Aaron Boster style channel, to help people learn about their disease and find a community for support. What you do is so valuable to those stuggling with MS. I especially love the videos on good and bad practices from your MS provider. If you are new to this, you could waste months or even years on someone who isn't tracking your MS as well as it should be.
What a great Doctor and an amazing person. It is not enough to see that you get up early on a weekend to help others understand, cope, and live their best life with MS it is that your passion, empathy, positivity, and sense of humor come through in every video. Thank you…..I am up early also, Now how do I find out when you go live. I do watch the recordings but I really like to watch live.
I have a question? What are your thoughts about having Retuxin infused in you to the max right away. I have been on it for 4 years and I only had 1 reaction on my first one since I been good. I mostly want it to the max right away because I don't want to stay there for 6-8 hours I only want to stay there for 1 hour. I'll also talk to my doctor too.
Hello howdy hi Dr Boster – had just gone to bed so unfortunately missed this one but still awesome on replay – thank you 😁. Hope you sleep better tonight! 🔥🔥🔥🔥🔥
Don't remember how I found you but so glad I did, Have taken the MS water challenge on a daily basis, no bladder issues for 6 months. Question on Zeposia, Dr ( MS specialist) prefers switching me from Tecfidera to Zeposia rather than Mavanclad. (I'm 74, 32 years MS, now on 4th DMT). Thoughts?
Hay, Im a 58 year old single man, fairly handsome for the age but, I was thinking that it would be nice to date a lady with MS, similar to mine. Wouldn’t that be cool. good Doctor, I think that you need to make some kind of program for MS dating. Please think about it. Cheers, Tibbetts from PDX
I have to pick up my son now, and I will miss your live stream. Ill try to catch some later but, please call me. I sincerely need another opinion. The doctors I have right now do not meet your qualifications. I am taking a six month to six month to six month infusion of re-tocsin. Right now I must be running out of it. I am due for a new infusion in one week. However, I am really fatigued right now and have been for like three weeks. Also my drop leg has come back. Also my cod fog, distractions and impulsive behavior have increased greatly in the last month. And I am waiting till next week to get my vaccine just before I get my infusion. What do you think of that question mark I have been also thinking that maybe I should use a different medicine until the Covid is long gone? What do you think. I need to go now, would you please call me next week? You can also send me a text message on the number I gave you and probably the best way for you to leave a message if I don’t get a hold of you on the phone. Thank you so much. Sincerely Daniel Tibbetts and Portland Oregon
Good Doctor, I have RMS with intense fatigue, some drop leg (left), Cog Fog, new left eye head aches with some double vision and I am a poor sleeper. Here is the question: I also have TBI from a car accident on 12-13-18, I was diagnosed with MS in May of 2018 but, I had symptoms of MS for a while, I remember experiencing symptoms in 2006. I was diagnosed with RA but, I did not think it was RA. I was taking Humara for RA and in 2018 the MS doc said that the Humarah seems to be what caused the significant MS flair up in May of2018, which left me with left side of my body strength in leg, arm, hands and eyes and great fatigue, depression and cognitive issues. But, I recovered from much of most of the weakness of my left leg, arm, hand, eye and etc…. I was very mobile, began practicing my instruments and finished out the school year and retired early on disability. I was going to substitute teach while getting my pension: however, the car accident came with a lot of issues. I am worse off by far after the accident. I did not have bleeding inside my head, brain and no broken bones, (except for my nose, some teeth and ear on the left side) but, my head trauma started having symptoms which increased over the year and continues to have more intensity of cognitive decline. I had a full scale of 148 and now the same assessment done a year after the last assessment used to validate ASD (which i have had since birth), and the new full scale came to 87, a decline across all sub test and clusters in the area of speed. All timed assessments declined greatly. I am asking you if there could be some interaction between MS and TBI? Also, I think I would like a second Doc take a look at my MS issues, and I would like to talk to you about that. I have two big insurance policies and if you do not take them, I will pay in cash or other. (I could help with your lessons). Number is 971-533-2772 . Sincerely, Daniel Tibbetts.
Possible future question: Diagnosed with late onset PPMS when I was 70. Have been on Ocrevus since then but my new neurologist would very much like to stop my infusions because of my age. Last MRI, no new lesions and no growth of existing lesions. Thoughtts on the elderly and Ocrevus? Any alternative treatments for the elderly?
I’m laughing because I’m getting MS information from a Disney character, and I still feel lucky because I’ve received more info today from this character than I have from my own MS specialist. Not once has he talked to me about Any of this. Not once has he asked. You are the best Dr. B. ♥️🙏🇨🇦
Thank you for answering my question regarding Psoriasis, if I could pick your brain to see if I can take tablets for Psoriasis similar to tecfidera whilst on ocrevus as I know I can't take tecfidera and ocrevus together
Thank you so much for your videos. They have taught me so much. I have lost so much of what made me me but at least I understand why I am in so much pain now and why my brain no longer works.
I know sometimes our meds ( DMD) can treat other issues we have- example- Mavenclad- cured my wart on my hand.
I have Warriors in my group with cancer as well as MS. The chemotherapeutic meds that treat the cancer- seem to also calm the MS down- dual action- but off label ( or some good side effects as I call it) Great Q&A Doc #sharingiscaring
Howdy & Good morning Dr. Boster!! Again thank you for what you do, Much appreciated. I'm happy to share that in spite of the MonSter in me….I AM Fighting back….when & whomever possible I share what I have learned & I'm learning more thanks to you. Also, I am happy to share that, I have been in contact with N.Y.'s Columbia University & I'm in the process of donating my brain & spine upon my demise. Again thank you for all you do & I look forward to your next YouTube session.
good morning from Lincoln, Nebraska! looks like I missed this live stream😕. not enough of an early bird for this one. I'll keep watching for the next one!
Hey doctor hope you are well. I'm still fighting this but losing me. Dr says I'm a mess and holds her head in her hands. 3 meds allergic to the ms medication. Have a lot of diagnoses. I feel like I'm getting worse. Cognitive decline and untreated pain. I'm still trying. Have you heard of lion's mane mushrooms. ? For Cognitive issues.
HOWDY! I'm blown away by this growing global online community! Ya'll ROCK Loved this Q&A!
#WeHaveMS #StrongerTogether BosterMS.com
So, can Mavenclad be used in 58 year old with an inactive MS status? Progressive disease but PIRA
Thanks!
Thanks ! I always learn something new from you. Greatly appreciate the time that goes into making these videos for people like me with MS.
Thanks!! I always learn something new with each video. Very appreciative of the time it takes for you to make these videos for us.
i'm so grateful to you for sharing these videos–even sufferers don't fully understand how it can impact us. it hits different coming from an empathetic expert that also was affected personally. it's always comforting to hear you so thank you 💙
Good morning. I am starting my journey of a neurological, autoimmune journey. My Dr and I have been running tests since January. Every rime we start to chase a disease, I occupy my headspace with research. The one we are chasing right now is MS. The symptoms really seem to line up… I have had 1 MRI, of my brain, which does show lesions, but since I am also a long-term sufferer of migraines, we are unsure the cause. I have a follow up MRI for my spine, to look for lesions there as well, with an LP, if necessary. I will also be seeing a neurologist, to help confirm (or deny) the diagnosis. All this to say, Thank You. Whether this ends up being MS or not, your videos have been such a wealth of knowledge. I wish every condition I have looked up over the last 4 months had an Aaron Boster style channel, to help people learn about their disease and find a community for support. What you do is so valuable to those stuggling with MS. I especially love the videos on good and bad practices from your MS provider. If you are new to this, you could waste months or even years on someone who isn't tracking your MS as well as it should be.
Would Evusheld be recommended every 6 months. I had my Evusheld shots 3 weeks ago.
What a great Doctor and an amazing person. It is not enough to see that you get up early on a weekend to help others understand, cope, and live their best life with MS it is that your passion, empathy, positivity, and sense of humor come through in every video. Thank you…..I am up early also, Now how do I find out when you go live. I do watch the recordings but I really like to watch live.
I have a question? What are your thoughts about having Retuxin infused in you to the max right away. I have been on it for 4 years and I only had 1 reaction on my first one since I been good. I mostly want it to the max right away because I don't want to stay there for 6-8 hours I only want to stay there for 1 hour. I'll also talk to my doctor too.
Hello howdy hi Dr Boster – had just gone to bed so unfortunately missed this one but still awesome on replay – thank you 😁. Hope you sleep better tonight! 🔥🔥🔥🔥🔥
Don't remember how I found you but so glad I did, Have taken the MS water challenge on a daily basis, no bladder issues for 6 months. Question on Zeposia, Dr ( MS specialist) prefers switching me from Tecfidera to Zeposia rather than Mavanclad. (I'm 74, 32 years MS, now on 4th DMT). Thoughts?
Watching your replay I appreciate your knowledge
How'd Dr Boster. From Arizona 🌵🐢
Please comment of a patient who has MS and TBI. I sent a question a bit ago but, I don’t see it posted.
Hay, Im a 58 year old single man, fairly handsome for the age but, I was thinking that it would be nice to date a lady with MS, similar to mine. Wouldn’t that be cool. good Doctor, I think that you need to make some kind of program for MS dating. Please think about it. Cheers, Tibbetts from PDX
I am so sad i missed this
I have to pick up my son now, and I will miss your live stream. Ill try to catch some later but, please call me. I sincerely need another opinion. The doctors I have right now do not meet your qualifications. I am taking a six month to six month to six month infusion of re-tocsin. Right now I must be running out of it. I am due for a new infusion in one week. However, I am really fatigued right now and have been for like three weeks. Also my drop leg has come back. Also my cod fog, distractions and impulsive behavior have increased greatly in the last month. And I am waiting till next week to get my vaccine just before I get my infusion. What do you think of that question mark I have been also thinking that maybe I should use a different medicine until the Covid is long gone? What do you think. I need to go now, would you please call me next week? You can also send me a text message on the number I gave you and probably the best way for you to leave a message if I don’t get a hold of you on the phone. Thank you so much. Sincerely Daniel Tibbetts and Portland Oregon
Good Doctor, I have RMS with intense fatigue, some drop leg (left), Cog Fog, new left eye head aches with some double vision and I am a poor sleeper. Here is the question: I also have TBI from a car accident on 12-13-18, I was diagnosed with MS in May of 2018 but, I had symptoms of MS for a while, I remember experiencing symptoms in 2006. I was diagnosed with RA but, I did not think it was RA. I was taking Humara for RA and in 2018 the MS doc said that the Humarah seems to be what caused the significant MS flair up in May of2018, which left me with left side of my body strength in leg, arm, hands and eyes and great fatigue, depression and cognitive issues. But, I recovered from much of most of the weakness of my left leg, arm, hand, eye and etc…. I was very mobile, began practicing my instruments and finished out the school year and retired early on disability. I was going to substitute teach while getting my pension: however, the car accident came with a lot of issues. I am worse off by far after the accident. I did not have bleeding inside my head, brain and no broken bones, (except for my nose, some teeth and ear on the left side) but, my head trauma started having symptoms which increased over the year and continues to have more intensity of cognitive decline. I had a full scale of 148 and now the same assessment done a year after the last assessment used to validate ASD (which i have had since birth), and the new full scale came to 87, a decline across all sub test and clusters in the area of speed. All timed assessments declined greatly. I am asking you if there could be some interaction between MS and TBI? Also, I think I would like a second Doc take a look at my MS issues, and I would like to talk to you about that. I have two big insurance policies and if you do not take them, I will pay in cash or other. (I could help with your lessons). Number is 971-533-2772 . Sincerely, Daniel Tibbetts.
Catching you this snowy afternoon in Wisconsin. Thanks for putting the short summary in the graphics. Very helpful. As are YOU. Thanks!!
Hello from SW Washington.. I have not been able to sleep!! And paying for it
Possible future question: Diagnosed with late onset PPMS when I was 70. Have been on Ocrevus since then but my new neurologist would very much like to stop my infusions because of my age. Last MRI, no new lesions and no growth of existing lesions. Thoughtts on the elderly and Ocrevus? Any alternative treatments for the elderly?
Is there a medication a patient can take besides Steroids that can help when Ocrevus wears off too soon?
I’m laughing because I’m getting MS information from a Disney character, and I still feel lucky because I’ve received more info today from this character than I have from my own MS specialist. Not once has he talked to me about Any of this. Not once has he asked. You are the best Dr. B. ♥️🙏🇨🇦
🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥❤❤❤
Thank you for answering my question regarding Psoriasis,
if I could pick your brain to see if I can take tablets for Psoriasis similar to tecfidera whilst on ocrevus as I know I can't take tecfidera and ocrevus together
Is pancreatitis, or spinal injury connected to M.S Hugs or stomach pains?
Hello! Got my coffee and ready to learn! 🔥🔥🔥🔥🔥🔥🔥🔥
Thank you so much for your videos. They have taught me so much. I have lost so much of what made me me but at least I understand why I am in so much pain now and why my brain no longer works.
PLEASE do a video on MS and extreme heat sensitivity (hot and cold) treatment, etc… PLEASE
Hi Dr.B! still loving, and watching it after.
Ty for your wonderful energy with helping us in our MS journey ❤️
I know sometimes our meds ( DMD) can treat other issues we have- example- Mavenclad- cured my wart on my hand.
I have Warriors in my group with cancer as well as MS. The chemotherapeutic meds that treat the cancer- seem to also calm the MS down- dual action- but off label ( or some good side effects as I call it)
Great Q&A Doc
#sharingiscaring
Smh- 3 am- gramma was right
👍
Howdy & Good morning Dr. Boster!! Again thank you for what you do, Much appreciated. I'm happy to share that in spite of the MonSter in me….I AM Fighting back….when & whomever possible I share what I have learned & I'm learning more thanks to you. Also, I am happy to share that, I have been in contact with N.Y.'s Columbia University & I'm in the process of donating my brain & spine upon my demise. Again thank you for all you do & I look forward to your next YouTube session.
Good morning. Kennewick, WA here.
👍
Good morning and is trigeminal neuralgia considered a flare or exacerbation?
🔥
How to know difference MS or spine injury❤️
Is trigeminal neuralgia considered a flare or exasperation
Coffee is great. 10am here in Salem, NY
You bolster my spirit and knowledge of MS, more than any physician I've known for 13 years.Thank you!
Always like your vids.
Good morning!! From SC
good morning from Lincoln, Nebraska! looks like I missed this live stream😕. not enough of an early bird for this one. I'll keep watching for the next one!
🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥
Good morning', Doug with coffee in hand from Lyndhurst
Hey doctor hope you are well. I'm still fighting this but losing me. Dr says I'm a mess and holds her head in her hands. 3 meds allergic to the ms medication. Have a lot of diagnoses. I feel like I'm getting worse. Cognitive decline and untreated pain. I'm still trying. Have you heard of lion's mane mushrooms. ? For Cognitive issues.